A Kansas man with a rare disorder spent decades advocating for gene therapy. It may never help him

Donavan Decker talks while sitting in the middle of a room at his home in Andover, Kans., where he keeps a small office space. Carlos Moreno/KCUR 89.3
By Alex Smith KCUR In the summer of 1999, a soft-spoken air traffic control specialist from South Dakota named Donavon Decker captured national attention when…

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